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Global Voice of Sickle Cell Warrior Foundation.
A NON-FOR-PROFIT ORGANIZATION.

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We are here to campaign for individuals living with sickle cell disease and to increase awareness about sickle disease.

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Help us building the next generation of leaders and a sickle cell disease-free future for us all.

A Non-for-Profit Organization

Global Voice of Sickle Cell Warrior Foundation

Sickle cell disease has been largely an invisible global health issue, especially in regions of high incidence mainly due to lack of awareness among both the local health policy makers and the public (Mburu & Odame, 2019). Sickle cell disease is a genetically inherited blood disorder that affects millions of people worldwide, making it a public health concern. Even though SCD cases are widespread in Africa, Asia, and Middle Eastern regions, the immigration rates have increased the SCD rates in the United States of America. According to world health organization (WHO) Migration raised the frequency of the gene in the American continent. In some areas of sub-Saharan Africa, up to 2% of all children are born with the condition (Modell & Darlison, 2008). A global coalition is needed to successfully battle, decrease the rate, and probably eradicate the disease—the foundation goal is globally addressing this blood disorder from its root and raising global advocacy and awareness.

How Can You Help?

The foundation will continue to offer professional assistance and resources to suppliers of SCD-related programs located outside its activity area.

The organization would foster and promote collaborations between Comprehensive Sickle Cell Centers and other agencies that offer genetic testing and therapy, case management, and psychosocial assistance to sickle cell disorder patients and families. The agency will provide insurance counseling, pharmacy help, financial help, coping skills improvement, and other social resources and referrals (Sundd et al., 2019). Patients with SCD need lifelong treatment due to their hereditary recurrent condition. Likewise, people who possess the SCT are often unaware that their offspring are at a heightened risk of contracting the disease.

The organization will conduct community mobilization in all 50 states and around the world. Campaigns to raise awareness about SCD and associated disorders, educational wellness fairs, camps for children with SCD, genetic trait testing and follow-up therapy, referral networks, scholarship services, and other unique events are also included in the activities.

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Our Causes

The organizations’ mission is to demonstrate how neighborhood organizations collaborate with medical centers and local and state government departments to advance international health care goals. The organization recognizes that no one organization will fulfill all of the demands and difficulties faced by individuals living with sickle cell disease (SCD) and their families. The organization wants to collaborate with the community, corporate, and other not-for-profit organizations and initiatives at the local, regional, national and international levels as part of its strategic strategies and increase its effectiveness. The organization seeks to understand the essential nature of securing necessary funding for the socioeconomic and public health facets of sickle cell disease as critical components in a holistic approach that meets this community’s needs.

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The organization would foster and promote collaborations between Comprehensive Sickle Cell Centers and other agencies that offer genetic testing and therapy, case management, and psychosocial assistance to sickle cell disorder patients and families. The agency will provide insurance counseling, pharmacy help, financial help, coping skills improvement, and other social resources and referrals (Sundd et al., 2019). Patients with SCD need lifelong treatment due to their hereditary recurrent condition. Likewise, people who possess the SCT are often unaware that their offspring are at a heightened risk of contracting the disease.

The organization will conduct community mobilization in all 50 states and around the world. Campaigns to raise awareness about SCD and associated disorders, educational wellness fairs, camps for children with SCD, genetic trait testing and follow-up therapy, referral networks, scholarship services, and other unique events are also included in the activities.

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The foundation will continue to offer professional assistance and resources to suppliers of SCD-related programs located outside its activity area. Among the most prominent of these are vendors of such facilities in African countries with a substantial SCD and SCT prevalence. The organization would push for expanded access to genetic therapy, newborn SCD education, child and prenatal care, clinical services, and an expansion in the number of adult facilities with expertise in SCD. Public health interventions, such as screening of newborns, provision of prophylaxis against bacterial infections, and immunizations against pneumococcal infections can have the greatest impact (Mburu & Odame, 2019). Similarly, the association advocates for expanded and concerted government initiatives to fund studies that would discover potential therapies for SCD and a systematic attempt to find a cure.

Abosede Ogundimu
MSN MPH

Founder

Abosede.Ogundimu@globalvoiceofscd.org

Azeezat Adeduntan
CNP

Medical Consultant

Azeezat.Adeduntan@globalvoiceofscd.org

Adeleke Sanni Mutushi

Web Developer

Adeleke.Sanni@globalvoiceofscd.org