Product and Services

The organization would foster and promote collaborations between Comprehensive Sickle Cell Centers and other agencies that offer genetic testing and therapy, case management, and psychosocial assistance to sickle cell disorder patients and families. The agency will provide insurance counseling, pharmacy help, financial help, coping skills improvement, and other social resources and referrals (Sundd et al., 2019). Patients with SCD need lifelong treatment due to their hereditary recurrent condition. Likewise, people who possess the SCT are often unaware that their offspring are at a heightened risk of contracting the disease.
The organization will conduct community mobilization in all 50 states and around the world. Campaigns to raise awareness about SCD and associated disorders, educational wellness fairs, camps for children with SCD, genetic trait testing and follow-up therapy, referral networks, scholarship services, and other unique events are also included in the activities.
The foundation will continue to offer professional assistance and resources to suppliers of SCD-related programs located outside its activity area. Among the most prominent of these are
vendors of such facilities in African countries with a substantial SCD and SCT prevalence. The organization would push for expanded access to genetic therapy, newborn SCD education, child and prenatal care, clinical services, and an expansion in the number of adult facilities with expertise in SCD. Public health interventions, such as screening of newborns, provision of prophylaxis against bacterial infections, and immunizations against pneumococcal infections can have the greatest impact (Mburu & Odame, 2019). Similarly, the association advocates for expanded and concerted government initiatives to fund studies that would discover potential therapies for SCD and a systematic attempt to find a cure.