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There is a shortage of analysis and knowledge regarding the SCD community’s needs, making it impossible to advise programming and policy that meet such needs accordingly. There are, however, evidence-based measures that some individuals with SCD can access, but many do not or unable to access. Clinical practice protocols established for the treatment of SCD are not always followed; even though there is clear proof that such services are beneficial, not all individuals with SCD have access to them (Gardner, 2018).