Global Voice of Sickle Cell Warrior Foundation

The organization is working to meet the needs of patients, families, and populations impacted by Sickle Cell Disease by providing education, knowledge, and empathy in the United States and internationally. Creation and dissemination of instructional materials, granting of post-doctoral research fellowships, medical scholarships for sickle cell patients, patient advocacy services, and professional training and assistance by state, international, and local conferences are among the organization’s international programs. In over 300 counties throughout the United States and worldwide, the organization aims to have member groups offering various medical advocacy programs such as day camps, counseling, home treatment, and tutoring. Working alongside community-based organizations (CBOs) around the world, focusing on areas with lack of resources, to adopting a consolidated strategy to access quality treatment, quality care enhancement, and strategic efforts inside the sickle cell population, the organization, acts as the International Backbone Body for US health research services administration, and other international health research administration. GVSCWF has a one-of-a-kind chance to improve its operations by meeting the following main goals as part of this global initiative:

Executive Summary

The organization aims to have a long history of establishing and supporting research projects to improve people’s lives with sickle cell disease (SCD). Scientific advancements have resulted in improved diagnosis and care of SCD and the avoidance of complications. As a consequence, individuals with SCD live longer and are more prosperous than they were before.

Our Mission

To campaign for individuals living with sickle cell disease and inspire community-based organizations to improve individuals’ quality of life and increase public awareness about sickle cell disease, all while promoting the quest for a universal cure and cessation of sickle cell birth.

Our Visions

The organizations’ mission is to demonstrate how neighborhood organizations collaborate with medical centers and local and state government departments to advance international health care goals. The organization recognizes that no one organization will fulfill all of the demands and difficulties faced by individuals living with sickle cell disease (SCD) and their families.

Objective Statement

There is a shortage of analysis and knowledge regarding the SCD community’s needs, making it impossible to advise programming and policy that meet such needs accordingly. There are, however, evidence-based measures that some individuals with SCD can access, but many do not or unable to access. Clinical practice protocols established for the treatment of SCD are not always followed; even though there is clear proof that such services are beneficial, not all individuals with SCD have access to them (Gardner, 2018). People with SCD die at a far greater pace than the general population.

123

Years Experiencve

456

volunteers

789

Awards

1011

Happy Patients