SPONSOR A SCD PATIENT

The organization aims to have a long history of establishing and supporting research projects to improve people’s lives with sickle cell disease (SCD). Scientific advancements have resulted in improved diagnosis and care of SCD and the avoidance of complications. As a consequence, individuals with SCD live longer and are more prosperous than they were before. The company is reevaluating and reconfiguring its SCD research policy to concentrate on a rejuvenated research portfolio of fundamental, therapeutic, and translational research, as outlined in its strategic plan. The organization is also working on creating evidence-based protocols for treating individuals with SCD that health care professionals can use worldwide. Additionally, the organization will initiate a public awareness and education program to raise awareness of SCD and bring it to the general public’s attention around the globe. Educating clinicians and patients regarding SCD diagnosis and appropriate care choices would be a critical part of this initiative.
Participants are tasked with discussing critical concerns related to target markets, messages, tactics, and alliances for a nationwide initiative. The presentations discuss the past of SCD and its administration, ongoing and proposed studies in the area, historical obstacles to and possibilities for planning a nationwide and worldwide recognition and education program, and an outline of Federal/global activities relating to SCD. SCD patients, family members, and health care professionals discussed their unique stories dealing with and treating SCD. The organization also engages in articulating active corporate recognition and education campaigns. The organization’s goals involve the following: i) soliciting proposals for comprehensive health awareness and education program to increase public awareness of SCD and to focus emphasis on its diagnosis and treatment globally and assembling a broad group of partners and other global agencies to collaborate with the organization in promoting the SCD awareness and education campaign.

GIVE A HELPING HAND

Sickle cell disease has been largely an invisible global health issue, especially in regions of high incidence mainly due to lack of awareness among both the local health policy makers and the public (Mburu & Odame, 2019). Sickle cell disease is a genetically inherited blood disorder that affects millions of people worldwide, making it a public health concern. Even though SCD cases are widespread in Africa, Asia, and Middle Eastern regions, the immigration rates have increased the SCD rates in the United States of America. According to world health organization (WHO) Migration raised the frequency of the gene in the American continent. In some areas of sub-Saharan Africa, up to 2% of all children are born with the condition (Modell & Darlison, 2008). A global coalition is needed to successfully battle, decrease the rate, and probably eradicate the disease—the foundation goal is globally addressing this blood disorder from its root and raising global advocacy and awareness.

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SUPPORT OUR CAUSE

The organization is working to meet the needs of patients, families, and populations impacted by Sickle Cell Disease by providing education, knowledge, and empathy in the United States and internationally. Creation and dissemination of instructional materials, granting of post-doctoral research fellowships, medical scholarships for sickle cell patients, patient advocacy services, and professional training and assistance by state, international, and local conferences are among the organization’s international programs. In over 300 counties throughout the United States and worldwide.

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